Thursday, August 29, 2013

Please pray for my sweet niece Adelaide Therese


Our newest niece, Adelaide Therese, was born on Tuesday afternoon.  We already knew she had a defect concerning her heart, but once she arrived the situation became much more serious than once thought.  She was baptized that evening and given last rites.  She was then transferred to Omaha, Nebraska to undergo the first of many tests to determine which treatment plan to follow.
She will be undergoing open heart surgery tomorrow and I humbly ask for your prayers and sacrifices for her and her family.

Below is the note we received from my brother-in-law this evening.  Thank you in advance for your kindness.

"Just wanted to give you an update.  We had a good day today.  She got a handful of screening tests done today (abdominal ultrasound, brain ultrasound, and an EKG) and from what they understand now it all turned out normal.  We met with the surgeon, and he said the surgery will likely occur around noon/1 o'clock.  He seemed very confident that it would be a successful surgery.  It will take about 4 to 5 hours, she will be under anaesthesia for about 4 hours, she will be 'opened up' for about 3 hours, and on the by-pass and artificial lung for about 1.5 hours.  The main things they are planning on accomplishing are first to correct the discontinuous left pulmonary artery (detach the left pulmonary artery which is currently not attached to the main pulmonary artery (so the oxygenated blood is not getting to her heart from the lungs as it should) and attach it).  Out of the thousands of pediatric heart surgeries he has done, he has done this three other time, but is very confident in the surgery.  This same thing might be occurring on the right pulmonary artery but should have a better idea once they open her up (it is also not as severe as it is on the left).  The second thing on the docket is much more common in babies.  He is going to correct the hole in her heart (i.e., a VSD) which is allowing the oxygenated blood to mix with the non-oxygenated blood.  The heart itself is "squeezing" just fine, it's just sending blood every which way and it's taking the long way around.  They expect this to be a pretty straight forward surgery and the surgeon placed the chances of survival above 99%, but there are many risks from nerve damage, strokes, requiring a permanent pace maker, to her body not taking the blood transfusion blood, and excesses bleeding after they stich her up, etc.  Your prayers for God's will to be done are much appreciated.  It was also very special today because Cacki and I got to hold her for about 10 minutes each...she was so comfortable with us holding her that her blood pressure dropped a little and then the nurse made us put her back in her bed.  She is awfully sweet, we think we'll keep her.

We really wished you all coud have been here for the baptism, but we thought that you all would understand.  Fr. Marzynski baptized her (he is a native Pole, and kept pronouncing her name "Adeline"...so hopefully it counts).  Some ladies here in town make baptismal gowns out of old wedding dresses specifically for the nicu babies that get baptized, so we were able to get one of those for our Adelaide.  Also, Fr. used a small seashell for the baptism.  He then gave her the anointing of the sick.  It was beautiful in its simplicity.  Here are some pictures of the baptism at St. E's in Lincoln, and some more pictures at the nicu here at the Nebraska Methodist Hospital in Omaha. " 

19 comments :

  1. Praying for little Adelaide and her family!

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  2. I will keep sweet little Adelaide and her family in my prayers. May Our Blessed Mother wrap her mantle around Adelaide.

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  3. Praying here too for little Adelaide Therese.

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  4. Oh I will pray! I will pray for a rosary for Adelaide Therese and her family. Praying fir you too Lindsay as you near your due date.

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  5. Praying for Adelaide today. God bless that family.

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  6. I will keep Sweet Adelaide close in my heart today, in my prayers, trials, intentions.
    In humility, I will pray for Adelaide to our own sweet, St. Miriam Rose, that was baptized and passed unexpectedly at 11 hrs old. Seeing as she is known to friends and family only, she is a little less busy then the greater saints, but has come through many times for people.=) May God Bless and keep Adelaide, the Dr's, and her family, especially today and through her recovery.

    Sharon

    www.mytreasuredgems.blogspot.com

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  7. I'll pray for her when I go to Mass this morning. God bless her and her parents.

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  8. I will definitely be praying for their family!

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  9. Praying for her and her family!!

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  10. Offering prayers for little Adelaide.

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  11. She is beautiful! Praying for little Adelaide and her family!

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  12. Praying for Adelaide and her family.

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  13. Praying for this beautiful, sweet baby girl and her family!! Also, I love her name, it is one of my top picks if we ever have another girl.

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  14. Dr. Duncan is the cardiac surgeon there and I have worked with him before.... he is AWESOME. Couldn't be in better hands. He really connects to his patients and their parents and he will be there for them for the long term if ever they need anything more. Also, he fixed a VSD on my friend's baby earlier this week, and she is doing well. They should look for the Daro family there in the NICU, good to have people who understand what you're going through. :) Prayers coming this little angel's way!

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  15. Praying for Adelaide and her family.

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  16. praying a rosary for sweet Adelaide

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  17. I've been thinking of Miss Adelaide all day and praying. Hope her surgery is going well. Continued prayers.

    Sharon

    www.mytreasuredgems.blogspot.com

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