We are Home

I guess when you go from these early pictures to the later pictures in a three week span in takes a while to process in your mind and heart. Lourdes and I arrived home on Friday, March 6th in the late afternoon. Lourdes is doing so well.  She is very loved by all her siblings. She hasn't figured out how to sleep at night so hopefully we can do that soon.  She is gaining weight and eating well.  My sister was on spring break the first week and then my mother was well enough to come a portion of the second week. Thank you for praying. I attempt to get to the computer every night to write all my memories of her birth and three week stay in the NICU.  
We are still awaiting the results from her genetic testing.  Babies born with omphaloceles have a thirty percent chance of having an additional syndrome called Beckwith-Wiedemann Syndrome.  Children with this syndrome lead a completely normal life in all realms.  What is especially worrisome is that if the syndrome is present, the child has an increased risk for developing cancer at an early age. If her results come back positive for the syndrome, she will have a blood draw every 6 weeks and an abdominal ultrasound every 3 months for the first 8 years of her life to check for tumors.  I really get overwhelmed at this possibility because of all the extra appointments and namely waiting "the call" every 6 weeks to see if anything was found. I know how it felt to wait the first time to hear if the mass was cancer so to do this every 6 weeks for 8 years is very overwhelming. Several have asked what they can pray for.  We would very much appreciate prayers for this testing to come back negative.  Thank you so much.