A note written by Priya's father:
Approximately three weeks ago, we began noticing that our youngest daughter, Priya (14 mos), was a bit fussier than normal. She wasn't sleeping as well at night, and she became more clingy during the day. She also became pickier about what she would eat, and she began to grind her teeth. It seemed to us that she may be teething, perhaps in combination with one of the numerous viruses floating around. When we first noticed that her tummy seemed slightly swollen about two weeks later, we initially thought it was rather cute. At this age, with the rate at which little ones grow, who really pays attention to the shape of a pudgy little infant? But her pleasant and easy-going disposition continued to decline, and on Monday night, April 1, 2013, we noticed for the first time that her breathing was abnormally rapid and shallow. So we decided it was probably time to get an antibiotic for the ear infection we assumed she had. On Tuesday (April 2, 2013) at 8:30am, we scheduled an appointment to see the doctor later that morning. At the appointment, our PA determined that something was amiss in Priya's abdomen and sent us immediately to the ER at St. Elizabeth's Hospital for X-rays. The X-rays showed a large amount of fluid in her right lung, and the initial diagnosis was that Priya had pneumonia, and that she should be treated with antibiotics and stay the night. But the ER doctor also ordered an ultrasound, which seemed to take an unusually long time. As it turns out, it's a good thing he did [order the ultrasound] and that it did [take a long time]. For when the doctor returned, he informed us that Priya had a mass in her abdomen, and that she would need to be transferred to Children's Hospital in Omaha, NE, since Children's has resources to diagnose the mass and to treat it that exceed what is available in Lincoln. It's still Tuesday, and we arrived at Children's that evening at around 7:00. By Wednesday morning (April 3, 2013), Dr. Gnarra confirmed that the mass was cancerous, and biopsies were ordered to determine just what kind. On Friday, a sufficient number of the pathology reports had come in to make a provisional diagnosis that the cancer in Priya is an Undifferentiated Sarcoma (see the earliest post in the Journal: "What's Going On Inside Priya?"). Numerous of you, our friends, have suffered great trials before us. Thank you for showing us how to remain steadfast in the midst of uncertainty and loss. Because of the way God has used you to shape our lives, we are not in shock, or naive to the gravity of this situation; but neither are we afraid or resentful. We invite all of you to join us in hopeful prayer that Priya will be healed. St. Peregrine, patron of cancer victims, pray for us.
Five Ps in a Pod; August, 2012. Oldest to youngest: Piper, Paisley, Poppi, Posie, Priya.
* Here is the link to her CaringBridge website:
*Here is the link to sign up to pray for Priya around the clock:
You can sign up for a slot even if they are all taken. The family will update each slot when they are able. Thank you.